Helpful chapters on the loss of communication and caring for the child at home provide practical advice. Chapters are written by pediatric neuro-oncology experts and cover all aspects of treating a child with a DIPG including diagnosis, imaging, pontine function and anatomy, steroid treatment, radiation therapy, radiosensitizers, surgery, chemotherapy, and biologics. Understanding the Journey, A Parent’s Guide to DIPGĪ 368-page comprehensive resource that guides the family whose child has been diagnosed with a diffuse intrinsic pontine glioma through this difficult diagnosis.

Read it right now: A digital version of this book is available in our Digital Library. It defines in easy to understand language, a clinical trial’s process and structure. This log book also contains information about clinical trials, treatment procedures, blood counts, side effects, a journal section, and a place to take notes.īy Adam Cohen MS, MD & Howard Colman MD, PhDĪ concise reference guide which explains what clinical trials are. Along the Way, Documenting My Child’s Cancer JourneyĪ parental resource that provides a way to document medical treatments, hospital contact information, treatment expenditures, and local resources.

The brave one parents guide